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Are you the parent, carer or guardian of a child or young person aged 2-18 years old?
We need your help to take part in an important study the Murdoch Children’s Research Institute is conducting about measuring the health and wellbeing of children and young people. Findings will be used to evaluate new treatments for kids. Taking part will involve completing two surveys.
Interested in participating or want to know more?
Visit https://redcap.mcri.edu.au/surveys/?s=X87R9Y84HF&prem=1
Co-founder Amber was in Melbourne this week to attend the first Expert Panel meeting of the National Preterm Birth Prevention Collaborative. Bringing together clinicians, researchers and consumers from all over Australia the group has a common goal. To lower the rate of preterm birth nationally to ensure better outcomes for children and families.
Professor John Newnham AM who is Chair of the Australian Preterm Birth Prevention Alliance together with Amber set the scene for the day. The impact preterm birth has on families, the developmental impact on the child, the economic cost of preterm birth not just in the Neonatal period but throughout childhood, what can be done and how we are going to work together to create change.
The Alliance has recently launched a new Facebook page and Twitter account and would appreciate you following along. You can find them on Facebook here: https://www.facebook.com/PretermAlliance/ their Twitter handle is @PretermAlliance
More about the Australian Preterm Birth Prevention Alliance ~ “The Every Week Counts: National Preterm Birth Prevention Collaborative is a two-year initiative aiming to safely lower the rate of preterm and early term birth within participating maternity units from across Australia and leave an enduring culture of better practice.
The joint collaboration between the Australian Preterm Birth Prevention Alliance, Women’s Healthcare Australasia (WHA), the Institute for Healthcare Improvement (IHI), and Safer Care Victoria, will use methods that have been successfully employed by hospitals around the globe for over 25 years.
Chair of the Australian Preterm Birth Prevention Alliance, Professor John Newnham AM, pointed to the Collaborative as being a truly national force aiming to strategically lower the rate of preterm birth.
“The National Collaborative aims to safely reduce preterm and early term birth across Australia by 20% through supporting hospitals in the adoption of evidence-based changes in clinical care,” Professor Newnham said.
“The evidence-based changes were first developed in 2014 by the Alliance, and have since been successful in reducing rates of preterm birth in Western Australia, Tasmania, and the Australian Capital Territory.
“Australia is now the world’s first to show that the rate of preterm birth can be safely reduced at a population level.”
WHA Chief Executive Officer, Dr Barbara Vernon, said that more than 30 hospitals across Australia would be involved in the National Collaborative.
“Australia has pockets of excellence for safely reducing early birth, however wide scale adoption across all health services has yet to occur,” Dr Vernon said.
“This model is designed to do just this and help organisations close the gap between what we know, what we do, and ultimately, prevent preterm birth and it’s far reaching impacts.”
During the Collaborative, participating hospital teams will be supported to accelerate their learning and develop reliable systems to ensure all women are offered the care and public health information that is known to reduce early birth. Teams will also be able to share their learnings with each other across Australia.”
Want to help research into respiratory illnesses?
If you are:
18 and above
Living in Australia
Expecting a child, and/or
A parent of a child under 5
Our friends at the Telethon Kids Institute are looking to hear from you!
Take part in the short (10-15 minute) survey to help researchers understand community views about respiratory illnesses in kids.
By providing your input, you’ll be helping to inform future prevention strategies to ensure that kids lead healthy, happy lives free from illness.
Thank you for helping to support this important research!
You can find the survey here: https://redcap.telethonkids.org.au/redcap/surveys/?s=JETM77NE3FWXYN44
Those of you following along for a while know that each year we run a Christmas Quilt drive. The drive enables us to gift each baby in a Neonatal Unit bed on Christmas Day, a beautiful hand made gift, along with a sentimental ‘Baby’s 1st Christmas’ ornament which have been generously made and donated by Foote & Flame every year since our inception.
Most years we have accepted a mix of rectangular quilts and Christmas stockings. Following extensive discussions with our hospital network, this years project with be Christmas Stockings. Our goal number is 300 stockings. Any stockings in excess of this are distributed to maternity wards and then paediatrics at the hospitals we work with.
The Christmas Stocking pattern can be found at Diary of a Quilter, and it’s with thanks to Amy Smart for allowing us to share with our network. Pattern and Instructions Link.
The cut off date to get your stockings to us is Friday 18 November. This allows us enough time to collate and distribute all over the state. Some parcels are posted to our regional hospitals so we need to work with Australia Post Christmas posting timelines too.
Any questions that you might have about this project can be posted into our Crafty Creator Group.
The Children’s Lung Health Term and the Preterm Community Reference Group at the Telethon Kids Institute would like your help in selecting the 10 research priorities you think are the most important.
They want to know what you, the community, think are the most important ideas for future research into the long term lung health of babies, children, and adults born prematurely.
You can find the survey here: https://curtin.au1.qualtrics.com/jfe/form/SV_eLnkhUrH8gG8fkO
We encourage everyone eligible to participate.
