Research on Exercise Interventions

People born preterm may exercise less, and at a lower intensity, than their term-born peers. They are also at risk of developing lung problems in later life. Exercise training can improve fitness and reduce symptoms caused by lung problems.

We are seeking adolescents and young adults (ages 12 to 35 years) who were born preterm, and parents of children (all ages) born preterm, to complete a brief (5 minute) online survey to understand the perceived need for an exercise training intervention for young people born preterm (Project ID: #45103).

The survey is anonymous and responses confidential. We are interested in all opinions, whether you (or your child) exercise a lot, a little or not at all! 

You can complete the brief survey by clicking on the following link:
https://monash.az1.qualtrics.com/jfe/form/SV_7a1SsytE0491uAK

Telethon 2024

It’s always amazing to be part of the Telethon action! We loved being part of the Charity Trail and meeting loads of families. It is such a special event, this year the total truly blew us away. Being a Telethon beneficiary makes helping more families through our programs so much easier.

World Prematurity Day Community Picnic

With World Prematurity Day (17 November) falling on a Sunday this year we are super excited to once again be having a Community Picnic to celebrate!

We welcome everyone to join us from 10 am to 1pm at Holyrood Pavilion and Park, Cambridge Street, West Leederville. We are partnering with The Kids for this event so there will be opportunities to hear the latest research impacting people born prematurely, we will also have face painting, a petting zoo and other family friendly activities. BYO picnic, suncream and picnic blanket.

This is a FREE community event however registration is encouraged. Those who register will go in the running for some amazing door prizes. To win you will need to be present when the door prize is drawn.

Conference Presentation

Recently the European Respiratory Society held their annual conference in Vienna.  For the very first time there was a dedicated segment on the program to discuss preterm associated lung disease.  Several researchers and clinicians presented the findings of their recent research in this area.  Our Co-founder Amber set the scene providing a Lived Experience perspective to open the session which was well received.