Blog
Our friends at Kalparrin need your help!
10 minutes is all it will take. If you are a Kalparrin member (it’s free!) and can help them out, they’d love to hear from you so that they can continue to review and refine the services and support that they bring to the community. Your opinion is KING so please, if you can, spend 10 minutes to tell them what you need by completing the survey. It will help them shape the future of the Kalparrin Community.
We were delighted to attend the launch of CONNECT at Telethon Kids Institute this evening.
We heard from Anne McKenzie about her vision for consumer engagement and the CONNECT program. Prof Jonathan Carapetis Executive Director explained he knew from the start how essential it is to partner with consumers. Prof Fiona Stanley shared her extensive experience connecting with consumers and how she began a SANDS group in her lounge room.
Catherine Hughes shared a consumer perspective, her story and the mutual benefit she has gained by being involved with Telethon Kids. Cath was the first to join CONNECT and sign the member agreement.
Closely followed by our Cofounder Amber. Amber contributes to Telethon Kids as Chair of the Preterm Consumer Reference Group, on the Steering Committee for the Wal-yan Respiratory Centre and in other working groups ensuring the views of the preterm community are heard. She works closely with Co-Head of the Children’s Lung Health Team Dr Shannon Simpson, pictured.
We wish to congratulate Telethon Kids on the launch of this truly incredible program and we encourage everyone interested in research to sign up. They are to be commended for their efforts to engage consumers, listen deeply and change the future so we can all raise happy, healthy kids!
We welcome you to join us for a cuppa and chat on Monday October 5 at Waldecks Kingsway, 173 Wanneroo Road, Kingsway from 10am to 11:30am. This is an opportunity to get together to connect and chat about high-risk pregnancy, bedrest, the neonatal unit and the challenges our 'tiny sparks' face when growing up. Everyone is welcome. Please look for our mascot Hopper and our sign on the table. Crafty Creators are also most welcome to attend and pass along any of their items in person. Please RSVP via our Facebook event page so that we can keep an eye out for you.
We welcome you to join us for a cuppa and chat at Someday Coffee Co, 445 Cambridge St, Floreat from 10am to 11:30am. This is an opportunity to get together to connect and chat about high-risk pregnancy, bedrest, the neonatal unit and the challenges our 'tiny sparks' face when growing up. Everyone is welcome. Please look for our mascot Hopper and our sign on the table. Crafty Creators are also most welcome to attend and pass along any of their items in person. Please RSVP via our Facebook event page so that we can keep an eye out for you.
It was wonderful to return to our monthly informal coffee mornings in July!
We will next be meeting on Monday August 10, at 10am at Secret Garden Cafe, 64 Angela St, South Perth. We welcome you to join us for a cuppa and chat, everyone is welcome. We would encourage you to RSVP via the Facebook event page so that we can keep an eye out for you. As always please look for our mascot Hopper and our sign on the table.
This is an opportunity to get together to connect and chat about high-risk pregnancy, bedrest, the neonatal unit and the challenges our 'tiny sparks' face when growing up.
Crafty Creators are also most welcome to attend and pass along any of their items in person.
