Harrison's Story

As a business owner, one of the greatest things you can do is share your success and I think great way to do that is to give back to the community. At Osinski Finance we have a very special link to a WA organisation known as Tiny Sparks WA. So, in honour of their work and to celebrate Father's Day 2017 we are running a 'promotion'. Terms & Conditions apply.

If you have a meeting with Osinski Finance from the 1st of August 2017 through to Father’s Day (3rd September 2017) and we can successfully get you a new loan we will donate up to $250 from our commission to Tiny Sparks WA when your loan settles. It doesn't matter if it takes us 2 weeks or 2 months to get the loan approved as long as your first meeting takes place in that period we will honour our commitment.

So why is Tiny Sparks WA so important to us? Well let me tell you a little story about how our son Harrison George Osinski came into this world;

Our Story started on the 27th January 2015, my wife Amy had been at a work dinner in the city that night and after some trouble getting home due to a number of bush fires in the area she finally made it home at 9pm and promptly went to bed complaining of a sore back but not thinking much of it.

The next morning, I awoke to find Amy not having slept all night due to her “back pain” coming and going in waves. I gave her a look to which she replied, “Don’t be silly, I’m only 29 weeks and this pain isn’t how labour is described in the books”. Being her first pregnancy and not knowing much we decided to call Rockingham Maternity ward for some advice on what she could take to relieve the pain.

The midwife on duty, whilst not concerned, suggested that we should come in for a check-up sometime that morning. So, we took our time, ate breakfast, watered the garden then headed to the hospital about an hour later.  Purely by coincidence when we arrived we ran into our obstetrician Dr Bouverie, who after enquiring why we were there, led us into an examination room and said a midwife would be with us shortly.

The midwife came in, attached the monitor to Amy, did a quick examination and said everything appeared to be fine. Just as the midwife was about to leave and confer with Dr B before letting us go home, Harrison’s heart rate disappeared from the monitor for a couple of seconds. This prompted her to suggest a more thorough examination, part way through this examination she excused herself to get a Dr to “have a look”.

At this stage, I can say we were both starting to worry. Next the Doctor on duty (who wasn’t Dr B) came in and examined Amy, again part way through his examination he excused himself to get Dr B to examine.

Dr B came in and after a quick examination informed us that we needed to get to King Edward asap because Harrison was on his way. The hospital staff sprang into action with our quiet little examination room becoming a hive of activity with 2 Doctors, 4 midwives and someone from administration putting in drip lines, giving Amy pills to take and organising an Ambulance.

Less than 10 minutes later Amy, a midwife (carrying a fishing tackle box which I though was weird thing to have, I later found out was an emergency delivery kit) and a paramedic were being loaded into the back of the Ambulance and I was getting into the front with the other paramedic. Next thing we are heading for King Edward under Priority 1 (full lights and sirens) up the Kwinana freeway in peak hour traffic.

Top marks to Jessie and Jackie from St John’s ambulance, not only did they manage to keep me calm during a stressful situation they made it from Rockingham Hospital to King Edward in Wednesday morning peak hour traffic in just over 40 minutes.

The next 3 to 4 hours were full of doctors, nurses and specialists trying to slow down Harrison’s arrival. It started out with trying to delay him 48 hours for the steroids Amy was given to strengthen his lungs, then it was 24 hours, then 12 and so on. Harrison was having none of it and at 12:56pm on the 28th January 2015 Harrison George Osinski was born weighing in at 1.455kg and 40cm long at 29 weeks and 6 days.

Lucky for us he was breathing on his own and that gave us a precious few minutes for a photo and quick cuddle from Mum before he was whipped off to the NICU with me in tow leaving Amy behind in the maternity ward.

I can safely say that arriving in the NICU with our son was one of the scariest moments of my life. Next came the doctors and nurses all working on getting Harrison hooked up to various monitors, drips, running various tests on him. Whilst I hovered around on the outer they worked at getting him settled into his new home and tried to reassure me that he was doing well.

From there our NICU journey started and at that time we had no idea how long we would be there, when the next time we could hold our son would be and if everything was going to be ok.

I think we were one of the lucky ones, Harrison was a fighter and there was no way he was going to put up with having to spend all his time in the humidicrib. Within hours Harrison was off the ventilator and on CPAP so he was breathing mostly on his own and CPAP was just there to help him along the way. This also meant that we were eligible for kangaroo care early on and both Amy and I took every opportunity to snuggle up with him as often as possible.

Life in the NICU in the early days was tough. You are basically a parent that must leave their newborn in the care of someone else. You have access to your child and you can stay as long as you like but at some point, you have to go home and trust someone else to look after the most precious thing in your life.  The first couple of days it was easier to leave because I knew Amy was still there recovering and I could head home at night knowing that she was only a couple of floors away.

Then came the day when Amy was discharged and we had to leave our little boy each night and it was hard. Don’t get me wrong, the nurses that provided round the clock care to Harrison were great, they kept us informed, they told us what each injection or supplement was for, what it was helping with, and what alarms/noises were normal. But it was still hard to leave him each night and travel the 45 minutes to an hour to our home in Baldivis and wonder if he was going to be ok there without us.

Again, I think we were some of the lucky ones, apart from being small (only 30 weeks in the oven will do that) Harrison was healthy and responding well. He was off the ventilator in a couple of hours and started putting on weight early on, at first it was a couple of grams but with the help of Amy expressing non-stop, every three hours like clockwork, he started putting on more and more. In the first week, a short bout of jaundice was all he really suffered and a day or so under the lights fixed that up no problems. Within a week he was off CPAP and could have his IV removed.

Before we knew it, Harrison was upgraded from the Special Care Nursery to another part of the NICU which meant that he shared a nurse with 1 or more other babies rather than having one to himself. It was at this stage that things became a little bit more difficult, life goes on, bills need to be paid so despite being given some time off work I needed to go back to work. My employer at the time was great, they gave me flexibility in my work schedule that allowed me to work from home early in the morning, miss the peak hour traffic, take Amy to the hospital and visit with Harrison for an hour or two, have a quick cuddle then head to the office for a couple of hours. Finish work in the afternoon head back to the hospital for some more time with Harrison before heading home in the evening again missing the afternoon traffic.

From there things only got better, Harrison was upgraded to different nurseries every couple of days to a week. Life in the NICU is all about the small wins, off CPAP, putting on weight, taking 5mls of milk and keeping it down and so on. On my birthday in February Harrison got his first bath from Mum and Dad and we were getting close to being able to take him home.

After what we were told was a short 5-week period he had reached the magical 2kg mark and passed all his tests so he was transferred down to Rockingham Maternity hospital on the 6th March 2015.                                                                                                                                               

Being out of King Edward NICU was great, not only did it cut down our commute to visit Harrison, meaning we could spend more time with him it also meant that all our friends and family could finally meet him in person to give him all the cuddles they had been hanging out to give him.

Less than 2 weeks later we had finally reached the day we have been waiting for, on the 18th March 2015, 1 month and 19 days after he was born Harrison was released from hospital and could come home.

Our journey through the NICU and prematurity was relatively short compared to some people and filled with lots of ups and not many downs. The same cannot be said about others journeys some families need a lot more support and have much longer journeys than ours and that is why organisations like Tiny Sparks WA are so important.

Organisations like Tiny Sparks WA not only provide a wealth of easy to understand information for families going through the NICU journey, they also provide real support to the parents of these children.

People always say having kids will change your life and for me Harrison coming into our lives the way he did certainly did. It opened my eyes to some great causes out there that need our support. Having recently started my own business, I now have a way to give back to an organisation that provides such a great service.

Nathan

Grace's Story

Written by Mum Allyson.

Grace was my fifth pregnancy, having had one miscarriage at 12 weeks in between my first two children. I had three sons; 5 ½, nearly 3 and 15 months when Grace was born. My pregnancy had been difficult with regular bleeding and a hemorrhage at 18 weeks where I felt I had lost my baby but scans showed that I still had a fetus. 

Grace when she arrived at King Edward.

Grace when she arrived at King Edward.

I was on the last day of 23 weeks when I felt strong pains in the evening. I went up to the Albany Hospital and they gave me Ventolin to stop the labor. Initially I didn’t realise it was labor as I was induced with my boys. That seemed to settle so by 9am the next day when my husband, Richard, bought the boys to see me, everything seemed to be okay. By Midday my labor had progressed remarkably and I was being prepped to fly to King Edward as they thought the baby would be born soon. 

We were transferred to the awaiting Royal Flying Doctors airplane. The engines were going and Richard was being strapped in when my waters broke. The RFDS Midwife made a lifesaving call when she said I would be transferred by ambulance back to Albany Regional. It took them a very short time to get me back to the hospital when Grace was born encaul at 3pm on November 26 1997. She was just 24 weeks gestation and a very tiny little girl (585gms). The three doctors and one midwife decided to do everything they could to support her survival as they have since told me that she looked strong and healthy enough to try.

The hospital was not equipped for such a tiny infant and a friend has told me that all available staff were called to cut down tubes to help with her survival. There was no ventilator, so when they had successfully intubated her my GP spent just under six hours hand ventilating her. They called the Neonatal team who arrived by RFDS just before 9pm who stabilised her, which took quite a while and then flew her up to KEMH. I was told that up to 4 aircraft were involved in her birth and transfer. Regional families could not survive without the RFDS.

Grace spent 10 weeks on a ventilator and took two months to reach one kilogram. She was discharged after 4 ½ months from the nurseries at KEMH in April 1998.

This year she turns twenty and has done incredibly well. She graduated high school last year and is currently working at Bunnings for a Gap Year before she goes to Perth to study Social Work. Her plan is to work with the families of Pre-mature babies at King Edward or Princess Margaret.

I support Tiny Sparks WA and all the work they do because I have walked the journey of having a baby prematurely without support and being from the country it is even more isolating. I would have loved to have the nurture and encouragement that they offer to families when we were going through the difficulties that only those who have been through it can understand.


We welcome families sharing their stories on our blog.  If you would like to share your story please send approximately 500 words and a few photographs to admin@tinysparkswa.org.au with the subject 'Family Story'.

Wynter is Born

Guest blogger Lisa R shared her pregnancy story on her blog, Wynter Dayz, in 2011 and has kindly agreed for Tiny Sparks WA to share it. This is part one of three parts to her journey. Parts two and three will be released soon.

Greg and I will have been married for 5 years this coming March. We have been together for over 12 years and this has been about as long as I have wanted children. Being a stay-at-home-mum has been my career goal for as long as I can remember.

We have experienced a few problems in conceiving a baby so we filled our lives with work and amazing holidays to all corners of the globe. Both my sisters were pregnant and so I decided to get help and really become serious in trying for a baby. While I was at the doctors office in April the doctor told me I was ovulating and bang...5 weeks later we were pregnant. I took the pregnancy test as a kind of joke and cried when I saw those 2 magical lines. I didn't sleep a wink the whole night wondering if it was really finally happening! After confirmation from the doctor Greg and I celebrated and decided to wait to tell the family till my 30th birthday just so we could have everyone together at once to see their faces.

I had a near perfect pregnancy. Not one day of morning sickness. All I had was a little sciatic pain and carpel tunnel for a few weeks. All my tests and scans were great. At the 20 week scan everything looked good and all we were told was that the bubba was a little over the average weight.

I loved being pregnant, granted it was an easy pregnancy but it felt so right and I was excited to see how my belly was growing. Greg surprised me with a Baby moon to New Zealand and we had a fabulous time sightseeing and taking photos of me sticking out my belly.

So on September 10th 2011 I was at work. I felt some crampy pains and thought it must be a growing day. I sat for a second to recover from a pain surge and worked through the rest of the day. By the time Greg picked me up at 5:30pm I didn't feel 100% and went to bed as soon as we walked in the door. While lying there I started to concentrate on the pain and realised it was coming and going in intervals. Greg called the midwife at the Family Birth Centre where I was booked in to deliver the baby and she said to go to the emergency department at King Edward Memorial Hospital and pack a bag. I thought by then it was Braxton Hick's and I would be home that night so refused to pack a bag.

I was examined by a nurse and by then the pain was becoming worse and I started to bleed. After doing an internal examination the nurse whispered to the other nurse "she is 4-6 cms dilated".....Is this woman kidding!?!? I am 23 weeks pregnant, how can I be dilated? Soon the room was filled with doctors and medical students and an ultrasound machine. The ultrasound told us I was 2.5cms dilated and the amniotic sack had bulged through my cervix and I was having contractions.

I was in labour.

I was told that the birth was inevitable but whether or not we could drag it out was to be seen as some women have lasted another 2 weeks at most in this condition.
I just said do whatever you can to stop this as I cannot have my precious baby this early. I was given morphine for pain and to slow contractions. I took pills to slow labour and I was given a steroid injection to help speed up the development of the babies lungs. The doctor proceeded to tell us that at 23 weeks gestation our baby had a 25% survival rate and the decision had to be made whether we wanted to hold our baby after the birth (which would mean we would watch it die on my chest) or did we want the doctors to take the baby straight away and do everything they could. For me that was an easy decision. Although my dream of bonding with my baby after birth was shot out the window I could not face the thought of letting it die if there was a chance they could revive it. I had carried this baby for just over 5 months and my love for my unborn child had grown everyday and I did not want to give up. We were told if I needed a C-section it would be a "classic" which meant I could never have a natural birth and this scared the hell out of me as I am terrified of C-sections.

So I was in labour all Saturday night with Greg and my Mum and Dad by my bedside rubbing my back while I groaned though every contraction. By Sunday morning the contractions had slowed. I resisted any more drugs and a catheter. The contractions started up again that night and by Monday morning I was wheeled down a level to have an ultrasound. Our worst nightmare came true as they told us bubba had moved down in the birth canal.  This shot any chance of trying to postpone the labor any longer as the bacteria in the vagina could harm the baby as it was not protected by the uterus anymore.

After trying to slow the labour for 2 days I then needed to get it started again to push this baby out! The plus side of bubba moving down meant I could have a natural birth but I did not want to be induced with synthetic hormones my body could produce itself so I started dancing and walking in the birth suite and bouncing on a fit ball to the tunes Mayer Hawthorne and Alicia Keys. I didn't feel much but after going to the toilet I felt something a bit different and the midwife checked it out and it was the baby. It was all go then so at the smallest contraction I pushed with Greg holding one leg and my mum holding the other.  Bubba was breech so after the first push Greg and Mum were excited to see a tiny foot still in the amniotic sack. As I kept pushing my waters broke with a huge explosion. The baby's head was stuck and the doctor was about to cut me to get it out when I gave one mighty push and bubba was free and clear.

"It's a boy!"

He was rushed over to 4 waiting doctors who were ready to intubate him. This is a tube pushed through the mouth or nose down to the lungs and then attached to a ventilator machine to help with every breath. As I watched the doctors working on my little boy I pushed out the placenta.  Then they were about to wheel him out which is good news as this means they have got him breathing and ready to be hooked up to the machines in the NICU (Neonatal Intensive Care Unit).

I saw him for a couple of seconds and he brought tears to my eyes looking like a skinned cat. Poor little muffin! I just wanted to make it all OK and I knew I couldn't at that time. I told Greg to follow the bubba back to the NICU.  Greg returned a bit later and we decided to announce he's name which we had discussed on the Baby moon.  A strong special name for a special boy.

Wynter Rock Rossiter.
Our baby is born!

Stella and Sam

Guest blog by Theresa Miloseski, mum to Stella and Sam, as shared at the Tiny Sparks WA 2015 Gala Dinner

Good evening.  I am honored to share some of our journey with you.  Robert and I are no strangers to the awfulness of trying to conceive.  We were overjoyed when our final IVF attempt was successful in a pregnancy lasting beyond the first trimester.  Our 20 week scan was perfect so we were a little unsure as to the discomfort I experienced one night in March 2012 – back pain and a bit of a leaky bladder –but hey, that’s normal isn’t it??

 I went to work the next day and placed a call to my Obstetrician.  I was busy doing board papers for the Board meeting but he asked me to call through for a quick check up.  I never did get to finish those Board Papers.  I arrived at my Obstetricians and after a brief examination, he broke the news that my membranes had ruptured and I was about 4 cms dilated. I had never heard of the term P-PROM and so it was not on my radar at all.   He explained he was going to call an ambulance to take me to King Edwards. I was 22 weeks pregnant.  I asked the midwife, what her chances of surviving were, she shook her head and told me how sorry she was but she wouldn’t survive if born now.  We were expecting a baby girl you see, we had already named her Stella.  I called Robert and tried to tell him what was going on but I couldn’t speak through the tears so I handed my phone to the midwife who filled him in and asked him to make his way to King Edward Memorial Hospital immediately. 

Outside I could hear sirens, not surprising as we were opposite St John of God Hospital, I had no idea that the urgency of those sirens was for me.  My Obstetrican had rang ahead and spoken one of the Neonatal Doctors and advised him of my impending arrival.  I was taken into the Labour and Delivery Ward and assigned a small Observation Room.  Robert arrived and we waited.  I had no idea if Stella was alive or not. 

Two neonatal doctors arrived to talk to us about our options.  They spoke to us both at length about the mortality rate for premature babies beyond 23 weeks and what we can expect if we do give birth so very prematurely.  Our aim was to get me to 24 weeks…23 weeks if necessary.  Questions were asked, answers were given.  There was nothing rosy about giving birth this early.  I’m not sure if we were to make the decision there and then but we all agreed to aim for 24 weeks.  One of the Neonatal Doctors discussed loosely with us the possibility of intervening say if she was born at 22+5 weeks and looking viable. Our heads were spinning.  We had so much information to process and think through.  I think Stella was listening.   I let Robert deal with telling our families.  I couldn’t face it without breaking down.

The next morning my Obstetrician came to check me over and realised no scan had been done, so I was raced off for an Ultrasound.  My heart was in my mouth but the scan revealed that Stella was not only still alive but still surrounded by fluid, which meant that I had not lost all of my amniotic fluid.  Our happiness at this news was short lived when I was faced with the inevitable task of choosing an outfit for Stella should she be born in the next couple of days.  The outfit I was choosing was for photos of her and what she would be buried in should she pass away.  How do you choose an outfit that you will be burying your child in?  How?  I don’t know.  I finally chose one and it was allocated to a cupboard next to my bed.  Dolls clothes, we were going to be burying our daughter in Dolls clothes.

The days merged into one of bedrest.  I was very sick with an infection of my waters.   Four days after my admission, my waters broke fully and my Obstetrician was called. I remember saying to the nurse if she is born tonight to please, please tell them that we want her resuscitated.  I was given a steroid injection for Stella’s lungs and we got through a very sleepless night.  My Ob came to see me first thing in the morning.  Another scan was done and Stella was still alive although she now had no fluid surrounding her.  Another injection of steroids was given and my Ob disappeared for the morning and came back around lunchtime to induce me and in that time we were waiting to have her the Neonatal team arrived to set up the bed that Stella would be placed on immediately after her birth.  They disappeared for a while but came back closer to the time of delivery.   

Stella, just born

Our beautiful daughter Stella Arielle was born at 6.13pm on Monday 19th March 2012 at 22 weeks, 5 days gestation, weighing 440 grams which is about the weight of a can of baked beans and was 27cms in length, with a head circumference of 19cms.  She was handed to the Neonatal Doctor and he worked his magic on her by hooking her up to the much needed life support equipment.   I asked Robert to take photos, lots of them as we had no idea what was going to happen with Stella.  He ended up handing the camera to one of the nurses so she could take those first precious photos after she was born.   She was like a little tiny doll, transluscent with her eyes still fused shut.  The Neonatal Dr stopped very briefly and allowed me to see her before they took her to the NICU with Robert following.

Robert made his way back to me eventually and with the help of a nurse, cleaned me up.  I was able to have my first shower in 5 days.  We both tried to process what had happened.  We had no crystal ball, so we had no idea of what to expect, but we didn’t expect what was about to happen next. 

Just a few short hours later the same Dr who was at her delivery and another of his colleagues came into our room and basically said I’m so sorry, we have done everything we can but it’s not looking good, we don’t think she is going to make it.  Do you want to get her Baptized because if you do, we can organise our Chaplain to come now.  I couldn’t stop crying.  I managed to indicate to Robert to call our Parish Priest Fr Joe who was not far away at St Josephs in Subiaco.  Rob placed a couple of calls to my family and his family to update them and the prayer circle for Stella began there and then. 

I was put in a wheelchair and made my first trip down to the NICU to see our baby girl and to spend what we thought would be our last time with her.  She was covered in plastic.  I didn’t like the plastic. How can she breathe in plastic? I was panicking and was insistent to the nurse that she couldn’t breathe and she needs to take the plastic of.  The nurse was trying to reassure me that the plastic was keeping her warm and she was breathing because she was ventilated through the mouth. 

Fr Joe arrived and I calmed down.  We baptized Stella there and then. We must have looked a slightly odd sight all crowded around her isolette as he gently baptized her with a cotton bud dipped in Holy Water.  We were told to take it hour by hour. We eventually made our way back to our room and spent a sleepless night waiting for the bad news to come.  But it didn’t…and morning came around and we went to see our very sick little baby girl still fighting, minute by minute, hour by hour.  We were told that she was writing the book, this was a first for them and so she was dictating the story. 

We kept on putting one foot in front of the other and spending as much time as we could with her.  Our life became routine.  There was no improvement, there was weight loss, blood transfusions – 2 in the first week she was born and regularly thereonin, there was a nasty open sepsis wound on her back which will be one of many scars on her body in the time to come.  Her foot was squeezed daily for drops of blood from the heel pricks that they do to test her levels.  She was in a critical condition.

A couple of weeks after she was born we were ushered into a windowless room outside the glass doors of the NICU where we were told once again that they couldn’t do much more for her.  She was on maximum ventilation and her lungs were just not coping.  Did we want to leave her to slip away peacefully as she was or did we want to try her with Dexamethazone to try wean her off the ventilation she was on.  The steroids had no guarantees of working and would more than likely come with horrible side effects which would affect her later on in life, if she did indeed live.  We chose the steroids.

That night I spoke to her for hours. I told her that if it was too much for her and she was too tired to fight, that we loved her and it was ok to go. She would be the brightest star in the sky and our heavenly angel.  I told her that the Baby Jesus was with her and I gave her permission to stop fighting.  Every time I mentioned this, her oxygen saturation level on he monitor would rise.  The nurse told me to keep talking to her about whatever it was that I was talking to her about as it was working.  She survived the night.  Hour by hour, day by day. 

Stella 5 weeks old, our first cuddle

Three weeks of Dexamethazone and she was eventually weaned of the HFO and Nitric to CPAP.  38 days after she was born and weighing 530 grams we finally got to hold Stella for the first time.  Prior to that, she was simply not well enough.  I was so scared I was going to hold her too tight. I cannot describe the feeling of holding her, possibly one of the best days of my life.  I felt like a Mother, I hadn’t felt like a Mother up until that point, you see.  We weren’t allowed to hold her for a lengthy period of time because it was using up all her energy but that first cuddle was the start of many more to come.

Stellas stay in the NICU included Anaemia, Jaundice, Sepsis, eight blood transfusions, Golden Staph, Lumbar Punctures, multiple medications for all the infections she was fighting, Daily heel pricks, head scans, heart scans, eyetests for ROP of which she had Stage 1 and more.  Stella was in hospital for 153 days in total.  She left hospital oxygen free but with a condition called Chronic Lung Disease due to the long time she was ventilated.  This has seen her admitted to hospital for oxygen support many times over the past 3 years.  I cannot praise enough or thank enough the absolutely amazing team at King Edwards for quite simply saving Stella’s life.  I am eternally grateful.

During our time in the NICU, we were made aware of some support groups specifically for families of premature babies.  We were given details of websites to peruse in the hope that we could make sense of what was happening on our NICU journey.  I was very privileged to have met some of the Founding Members of Tiny Sparks through one of these support groups and their support and friendship was immediately welcomed by Robert and myself.  We are all blessed to have these wonderful families doing the good that they do.

The NICU journey is so very hard, it’s painful, it’s frightening, overwhelming, lonely and can quite honestly do your head in.  Tiny Sparks are the kind of support group you do want to have by your side on this journey.  I honestly wish they had been around when we were going through our NICU journey.  The packages that they provide to not only those currently journeying through the NICU but to those on bedrest are essential.  Their online support pages and quick response are reassuring to the many men and women who are facing their own journey.  Thank you Tiny Sparks.

These ladies were amongst the very same group of friends I called on when I found out I was spontaneously pregnant with my second child only a couple of short months after Stella came home from hospital.   Our joy at being pregnant was quickly filled with fear.  I would wish no-one to go through what we had gone through with Stella. We were one of the lucky ones because we got to bring Stella home with us, many don’t.  How could we survive going through this pregnancy given my history?  Age was a factor, I had Stella at 43 and I had a couple of months ago turned 44, so having another baby was not on our radar.  I sought an immediate appointment with my Obstetrician who was very shocked and cautious.  We decided that we would wait and see if I could sustain the first trimester.  He suggested progesterone pessaries if I do last the first trimester.  We survived the first trimester and so with daily progesterone and regular scans I made it to 17 weeks before I had surgery for the placement of a cervical suture. 

I was under house arrest with the instructions to not do too much, no lifting, straining, or anything that could jeopordise my pregnancy.  It was very hard to keep to the rules as I had a very active crawling Stella to entertain.  Regular support check ups by the Tiny Sparks ladies kept my spirits high.  Tiny Sparks was being formed during this time.  At the 20 week scan we found out we were expecting a boy.  The stitch was holding well and the progesterone was doing its job!  It was a hard pregnancy to get through.  I was filled with fear every single day that our beautiful boy would come early. 

Sam just born and cuddles straight away

I am very grateful for the support we received from the premmie community that surrounded us.  Samuel Robert was born on 19th June 2013 via caeserian section at 36 weeks 6 days gestation and weighing 2.8 kilos.   I can’t tell you what it was like to feel like a real Mum, in hospital with her baby by her side. It was just the best feeling.

Stella and Sam growing up together

I would never have made it to 36 weeks with Sam if I hadn’t had the daily progesterone or the cervical stitch.  We are so thankful that the incredible team at WIRF are leading the way with the initiative of preventing preterm birth in the Whole Nine Months.  I would never wish anyone to go through the NICU journey.  It was without a doubt the hardest experience that Robert and I have ever faced in our lives.  That said, if it wasn’t for our journey we would never have met so many incredible people, most of whom I happily call our good friends… eg. Jackson is a little ex 26 weeker who was next to Stella in the NICU from when he was born for a few months.  Side by side they used to cheer each other on.  Three years on and their bond is unbreakable, as is our bond with his parents. Our tiny sparks come in varying degrees of gestational age and sickness.  No one baby is more precious than the other. They are all special, they are all fighters. 

Robert and I 100% support the Tiny Sparks community and the prevention of preterm birth through WIRF and I hope that you all support them to. You never know when you or someone you love will need their support. Thank you for letting me share some of our story with you.


Neonatal Unit Care Package Program Expansion

The Neonatal Unit Care Package program is expanding!

The Neonatal Unit Care Package program has been a flagship support program for Tiny Sparks WA, providing over 110 separate families with a Care Package at a difficult time in their lives. Funded entirely from public donations through Tiny Sparks WA fundraising or individual donations of whole Care Packages, these Care Packages have been well received by recipients and hospital staff, with wonderful feedback offered by recipients, a sample of which is below:

"Loved it at a time when nobody knows what to say or give as a gift"

"It made me feel very supported"

"It was an awesome gesture and really made my day"

"They are an amazing thing to receive, I will be donating"

We are now thrilled to announce a significant expansion of the Neonatal Unit Care Package program!

As of 1 July 2015 the distribution will increase to parents of babies born up to and including 1500g which will capture a significant number more families!

The expanded program has the potential to reach over twice the number of families in the next 12 months than the program has since its commencement in May 2014!

New Outfit Sizes

The original Neonatal Unit outfits that our industrious volunteers have been creating have been sized to approximately 1.2kg, therefore, the expanded Neonatal Unit Care Package program, which will reach babies born up to 1500g, requires a new size of outfit!

Newly posted on our Knitting and Sewing page are additional girls and boys patterns in 'up to 1.6kg' sizing. These have been listed under the 'low stock' heading as they are brand new - if you are able to assist in creating outfits in this new size and building our supplies we would be very grateful! 

Links to full instructions, pattern downloads and FAQs are all available from our Knitting and Sewing page.

We would like to thank all donors past, present and future for allowing the Neonatal Unit Care Package program to be a success and allowing its expansion! We would also like to extend a massive thank you to the key staff at KEMH who distribute all of the Care Packages and who are the crucial link between Tiny Sparks WA and the recipients.

Future Expansion

Yes, we want to keep expanding! Tiny Sparks WA acknowledges that it is not only premature babies that experience the Neonatal Unit, and as such, we are looking towards future expansions to other hospitals that will cater to the families of newly born babies requiring long term Neonatal Unit care due to illness or other reasons. Watch this space!

Full details of all Care Package programs are available on our Care Package page.